We’re thrilled to introduce you to someone truly remarkable—Hailee.
She’s an adventurous and curious kid who loves spending time with her family and practicing her sideways walk. Hailee also lives with Morquio (more-key-oh) syndrome, a rare genetic skeletal dysplasia that affects her bones, spine, organs, and physical abilities, demanding extraordinary care and attention.
Watch the video below to learn more about Hailee and her family.
You can be a part of Hailee’s incredible journey.
Please consider making a gift today to bring empowering, adaptive, year-round programs to children dealing with life-altering medical conditions and their families, completely free of charge.