Meet our friend Hailee.
She may be little, but she has a big sparkly personality! She’s an adventurous, playful kid who loves spending time with her family and practicing her sideways walk. Hailee also lives with Morquio (more-key-oh) Syndrome, a rare genetic skeletal dysplasia that affects her bones, spine, organs, and physical abilities, demanding extraordinary care and attention.
For Hailee, life is often filled with a whirlwind of medical appointments, treatments, and therapies requiring unwavering strength and commitment from her and her family. Her condition impacts her entire body, and she has more medical specialists at age seven than most people will see in a lifetime.